Our research identified serious gaps in understanding of, and communication about, ‘best interests’ in the UK. The booklets below were developed to help support best interests decision-making
On-line resources about family experience
- Visit our on-line ‘healthtalk‘ resource for families and practitioners – with 250 film clips from filmed interviews alongside concise information about key issues such as ‘definitions of the vegetative state’, ‘Long term care and rehabilitation’, ‘Impact on the Family’ and ‘Treatment decisions’.
- Poster healthtalk resource for care homes – drawing staff and family attention to the online resource
Booklets about key aspects of decision-making
- Booklet (.pdf version): ‘Serious medical decisions……the role of the family’ or, if you prefer, view as Flipbook here.
- View a short YouTube introduction to the booklet about the role of family and friends
- Booklet: ‘Mental capacity and best interests decisions’ (Derick Wade) (Flipbook) – or if you prefer, find a .pdf version here
- Booklet (.pdf version): ‘Timeline on administering and withholding/withdrawing treatment from severely brain injured patients (or, if you prefer, views as a Flipbook here)
Information about preparing for court hearing
- ‘Guidance form for application to court re patient in permanent vegetative state’
- The law on withdrawing artificial nutrition and hydration from patients in vegetative or minimally conscious states. Available to download Applying to court for ANH withdrawal
- Draft letter for permission to live-tweet from court hearing.
Sample advance decisions to refuse treatment
- Raanan Gillon’s Advance Decision
- Other sample Advance Decisions to follow
Other support and information:
- National Clinical Guidelines on the treatment of patients in prolonged disorders of consciousness, the Royal College of Physicians (2013)
- B.I.G – www.braininjuryisbig.org.uk – an on-line support network for people who have loved ones with devastating brain injuries.
- Headway: Headway’s nurse-led helpline provides information on all aspects of acquired brain injury. Tel: 0808 800 2244 or email@example.com.