On-line resources about family experience

  • Visit our on-line healthtalkresource  for families and practitioners – with 250 film clips from filmed interviews alongside concise information about key issues such as ‘definitions of the vegetative state’, ‘Long term care and rehabilitation’, ‘Impact on the Family’ and ‘Treatment decisions’.  (See also Poster about healthtalk resource for families: – drawing family attention to the online resourcePoster about healthtalk resource for  staff – drawing staff attention to the online resource)

Resources for families about their role and how to contribute information to best-interests decisions

Resources for healthcare professionals to support robust and timely  best interests decision-making

Books for families about the experience of caring for a relative in PDOC

  •  Lu Spinney’s  “Beyond the High Bue Air”
  •  Cathy Rentzenbrink’s “The Last Act of Love”

Sample advance decisions to refuse treatment

Other support and information:

Info for researchers