This project is focused on understanding and improving the end of life, for the growing number of people with reduced agency (e.g. linked to dementia, disorders of consciousness or chronic conditions in advanced old age). The collaboration, led by Jenny Kitzinger, brings together expertise across the universities of Bath, Bristol, Cardiff and Exeter. This initiative is suppported by GW4 funding
Relevant publication see:
Birchley, G, Jones, K, Huxtable, R, Dixon, J, Kitzinger, J & Clare, L, 2016, ‘Dying Well with Reduced Agency: A Scoping Review and Thematic Synthesis of the decision-making process in dementia, traumatic brain injury and frailty’. BMC Medical Ethics.