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1. Executive Summaries
- ‘Serious medical treatment and the law concerning patients in a permanent vegetative state’ (executive summary – pointing out implication for perceived need, at the time, to take all CANH cases to court) (Note – superseded by Supreme Court Judgment in Re Y)
- ‘Why PVS and MCS patients need case managers‘ (executive summary)
- ‘Reporting consciousness in coma: media framing of neuro-scientific research‘ (executive summary)
- ‘What’s important to residents and families in neuro-rehab…? – summary’ (executive summary)
- ‘The “window of opportunity” for death after severe brain injury- summary’ (executive summary)
2. Evidence submissions
- Evidence to: The Law Commission 2015 Consultation on the Law on Mental Capacity and Deprivation of Liberty (Evidence submission, 2015)
- Evidence to: House of Lords Select Committee on the Mental Capacity Act 2005 (Evidence submission, 2014)
- Evidence to: Parliamentary Select Committee Investigation into Continuing Healthcare Funding (Evidence submission, 2017)
- Evidence to: NICE (submitted 2018)
- Implications of Mandatory court applications – research evidence (Relevant to Re Y, Supreme Court Hearing Feb 2018)
3. Powerpoints, Posters & discussion Papers
- ‘The rehabilitative care work of ‘hotel’ service staff in care settings‘ (Poster, Latchem, J)
- ‘Inclusivity and the insider outsider debate’ (Poster, Kitzinger, C and Kitzinger, J., 2014)
- “Coma, consciousness and serious brain injury“. (Powerpoint, Wellcome Trust symposium)
- ‘Disorders of Consciousness Wellcome Symposium’ – see Kitzinger (2010) Wellcome Symposium WP (Discussion paper, 2010 – for symposium)
- The Mental Capacity Act and family experiences of ‘best interests’ Powerpoint, RHN 2014 International Brain Injury Symposium https://cdoc.org.uk/persons-wishes/
- ‘Does the possibility of moving from MCS into a state of ‘not being distressed’ overrule known past values and wishes?’ #COPBriggs’ (Wade, 2016)
- ‘The place of a person’s values & wishes in ‘best interests’ decision-making: reflecting on the Paul Briggs hearing’ (powerpoint)
- Twitter responses to ‘The place of a person’s values…’
- A ‘storify/wakelet’ account of the Paul Briggs court case – based on tweets from the hearing and subsequent twitter debate (Storify/wakelet) (prior to judgment)
- A Storify/wakelet account of the Mrs P case
- ‘Delays in treatment withdrawal…’ – presentation to Judicial College Family High Court Seminar
4. Magazine, general blogs and media articles
- Creating postive change: reflections on the UK Supreme Court decision about feeding tubes and end-of-life decisions
- ‘Life-and-death decisions: Knowing when to let go’. (Neuro-Rehab Times 4: 30-33, Kitzinger, C, 2017).
- ‘From research to creating social change through art and engagement‘ (blog for ESRC, Kitzinger, C and Kitzinger, J., 2015)
- ‘U.K.’s landmark case on withholding treatment affirms the importance of patients’ values’, (blog for Hasting bioethics center, Kitzinger, C and Kitzinger, J.)
- ‘Dying matters: that’s why we must listen to patients’ wishes‘, The Conversation, (article, Kitzinger, J., 2015)
- ‘Why are patients in permanent comas routinely kept alive?‘, The Conversation (article, Kitzinger, C and Kitzinger, J., 2015)
- ‘”M”, Polly and the right to die‘ (blog for Hastings bioethics, Kitzinger, C and Kitzinger, J. 2011)
5. Selected Relevant Blogs from the OpenJustice Court of Protection Project
- ‘How (and why) to tweet from the ‘secret’ and ‘shadowy’ Court of Protection’ (blog for Transparency Project, Kitzinger, J & Kitzinger, C, 2017)
- Mentoring undergraduates to observe a Court of Protection hearing by Jenny Kitzinger (25th February 2021)
Re TW (PDOC middle-aged man, family oppose withdrawal of ventilation, daughters want delay so can visit)
- 23rd February 2021 Ethical complexity in a life-sustaining treatment case (with link to judgment) by Bonnie Venter
- 22nd February Treatment withdrawal in the ICU when clinicians and family disagree by Bridget Penhale
- 24th February 2021 Two journalism undergraduates observe a Court of Protection hearing (with link to judgment) by Sophia Chew and Kimberley Wilkes
Re CD (PDOC, middle-aged woman, Mother + clinicians in dispute with father re CANH + ventilation)
- 24th March 2021 Parents in conflict over life-sustaining treatment for their daughter (with link to judgment) by Abigail Brown and Ffion Power
Re RS (PDoC, middle-aged man, clinical/family dispute re CANH) (Polish case + videos of patient placed on social media _ involvement of Dr with contested expertise)
- 7th April 2021 Faith, Science and the objectivity of expert evidence by Celia Kitzinger (with links to judgments)
- 31st March 2021 A perspective from the ICU on best interests at the end of life (with links to judgments) by Alex Warren
- 30th March 2021 Ambiguity and uncertainty in clinical reasoning by Derick Wade
- 30th March 2021 Use of videos in assessing consciousness: A clinical perspective by Lynne Turner-Stokes
- 29th March 2021 Seeing is Believing? Patient Videos in Life-Sustaining Treatment Disputes (with links to judgments) by Jenny Kitzinger
Re P (woman in 40s in MCS or emerged, CANH not raised by COP, although family members thought P would not want it
- 23rd August 2021 The elephant in the courtroom: Clinically assisted nutrition and hydration in a hearing about care and residence by Celia Kitzinger
Re ED (PDoC, young man, Family dispute re assessements & Best Interests re CANH, father wants more tests)
- 14th October 2021 When another assessment is not needed: Best interests decision-making for a patient with a prolonged disorder of consciousness by Jenny Kitzinger
Re RS (PDOC, middle-aged man, Family v. clinicians dispute, ICU, ventilation)
- 31st March 2021 A perspective from the ICU on best interests at the end of life (with links to judgments) by Alex Warren
- 30th March 2021 Ambiguity and uncertainty in clinical reasoning by Derick Wade
- 30th March 2021 Use of videos in assessing consciousness: A clinical perspective by Lynne Turner-Stokes
- 29th March 2021 Seeing is Believing? Patient Videos in Life-Sustaining Treatment Disputes (with links to judgments) by Jenny Kitzinger
Re GU (PDoC, man in late 60s, Ongoing CANH given & no court application made for years – in spite of dispute)
- 23rd June 2021 Clinically-assisted nutrition and hydration: Decisions that cannot be ignored or delayed by Jenny Kitzinger
- 24th June 2021 Urgency, delayed decision-making and ethics in the Court of Protection by Dominic Wilkinson
- 15th July 2021 Delay is inimical to P’s welfare: Guidance on clinically-assisted nutrition and hydration for PDoC patients by Jenny Kitzinger
- 17th November 2021 “Burdensome and futile” treatment and dignity compromised: Poor practice at a leading UK hospital by Jenny Kitzinger
Re Mrs W (Dying woman, late 70s, LPAs ignored & CANH withdrawn, without court application)
- 10th December 2021 Health and Welfare Attorney applies for urgent hearing on life-sustaining treatment by Jenny Kitzinger & Celia Kitzinger
- 29th December 2021 Patient dies in hospital as Trust fails to comply with Mental Capacity Act 2005 by Jenny Kitzinger and Celia Kitzinger
Re AH (PDoC, Clinician/family dispute re Best Interests, ventilator)
- 20th July 2021 A best interest decision about life-sustaining treatment for a person with profound neurological injury following COVID-19 infection by Jennifer O’Neill
- 6th September 2021 Best interests in a contested end-of-life case: Cambridge University Hospitals NHS Foundation Trust v AH & Ors [2021] EWCOP 51 by Celia Kitzinger with Claire Martin
- 30th November 2021 The most complex Covid patient in the world: Planning for a re-hearing after a successful appeal by Celia Kitzinger
- 13th December 2021 Family witnesses in court: Four reflections on Re AH (A Rehearing) by Upeka De Silva, Rhiannon Snaith, Claire Martin and Jenny Kitzinger, with additional comment by Tom Richards
Re AA (woman in 70s, recently collapsed, still in ICU)
- 15th December 2021 “At loggerheads”: Habitual residence, best interests and life-sustaining treatment by Celia Kitzinger
Re: TK (PDOC, family dispute with finance about CANH)
- 22nd December 2021 Family dispute about life-sustaining treatment: A directions hearing by Jenny Kitzinger
6. Evaluations of CDoC professional training/public engagement/arts events
- Training/Arts Event – Badby Park Care/Rehab Centre, Daventry
- Training day for staff – Highfield House specialist nursing home
- Family-education-day-evaluation – Description + Evaluation
- Art/Exhibition/Performance open day on ‘GW4 Dying with Reduced Agency’, Bristol
- Public Engagement Exhibitions & talks, ‘Coma and Consciousness’ event, Cardiff
- Consultation day (co-organised with INPA)
- E-learning [MOOC] course evaluation
- Perspectives on Death and Dying
- Blended learning course evaluation.: https://cdoc.org.uk/wp-content/uploads/2021/06/Caring-for-PDoC-elearning-evaluation-2016-2019-Report-Final.pdf