Conferences on end of life decision-making: exploring Christian perspectives
Gloucester and Cardiff conference (November -December 2016) We worked with partners to host two conference on end of life decision-making, the role of churches and ecumenical perspectives on ethics and theology. Panels addressed a wide range of issues, including diverse perspectives on treatment withdrawal and exploring advance decisions.
28th Nov and 1st Dec 2016 We were given permission to live tweet from a court case concerning Paul Briggs – considering continuation/withdrawal of ltreatment. The first time, as far as we know, that researchers have tweeted from a Court of Protection hearing about life-prolonging treatment. We tweeted from @cdocuk and our personal accounts (@KitzingerCelia & @JennyKitzinger) using #COPBriggs.
We contributed to a panel discussion of Christian perspectives on death and dying, Radio Wales, 23rd Nov 2016
16th and 17th Nov 2016 we co-hosted public events with Cathy Rentzenbrink to discuss her memoir about her brother’s catastrophic brain injury, and eventual death after on of the early UK court cases for treatment withdrawal. This was a collaboration with ‘Cardiff BookTalk’ and with the Being Human Festival.
16th and 17th Nov 2016 the latest performances of ‘Where Are You Now?’ as part of a conference (the 16th) and then part of the Being Human Festival (17th).
12th Nov 2016 – We co-hosted a poetry reading and concert – with sonnets and the inaugural performances of music specially composed to reflect new ‘coma’ research as part of the ESRC Festival of Social Sciences
16th and 17th Nov 2016 our co-produced art exhibition presenting new visual images of the vegetative state and family experiences was on display at ‘Brickstock’ as part of the Being Human Festival.
15th Nov 2016 – We contributed to a panel discussion on Radio 3’s ‘Free Thinking’ programme about the Being Human festival – reflecting on cultural images of coma (broadcast 10pm) http://www.bbc.co.uk/programmes/p04gl29m (28mins in)
10th – 11th Nov. 2016 – ER-WCPT Congress 2016 Liverpool (European Region of the World Confederation of Physical Therapy). Julie Latchem presented on ‘Developing a multimedia learning resource for Allied Health Professionals: exploring the challenges of prolonged disorders of consciousness’
Disorders of Consciousness – National Conference
“Challenges for Allied Health Professionals working with disorders of consciousness patients and their families: Introducing a new e-learning resource (Prof. Jenny Kitzinger,and Julie Latchem) National Conference on the recent advances in the assessment, diagnosis and multidisciplinary management of people with Disorders of Consciousness (DOC) 13 & 14 September 2016 Holy Cross Hospital, Hampshire.
Our case study of delay in stopping life-prolonging treatment published in Journal of Medical Ethics: goo.gl/5Y5SSw National coverage of this case including on Radio 4 The Today programme and BBC2’s Victoria Derbyshire show
8th August 2016 – BBC Radio 4, “Inside the Ethics Committee”: Celia Kitzinger, Tor Butler Cole and Lynne Turner Stokes discussed the ethics of artificial nutrition and hydration for a patient in a permanent vegetative state. Listen to the programme.
21st July to 13th October 2016 – The ‘Art of Caring’ exhibition at St Pancras Hospital, London – includes work from CDoC collaboration with Play of Light theatre.
30th June 2016 – Highlighting why families of VS/MCS patients so often wish their relative had an advance decision- on panel with Tor Butler-Cole, Chair of Compassion in Dying at the lovely Conway building, London.
23rd June 2016 – Our radio exploration of family accounts – “Coma Stories” – broadcast on Radio Wales.
22nd June 2016 – The final workshop group of Occupation Therapists – training in vegetative and minimally conscious states. These workshops are being filmed and will form part of an on-line teaching tool available soon.
24th May 2016 The Art of Caring: An art exhibition exploring the art of caring from many viewpoints, includes designs from our work with Karin Jashapara on her shadow puppetry theatre: ‘Where are you now?’ The Rose Theatre, Kingston, KT1 1HL http://www.artofcaring.org.uk/
18th May 2016 – CDoC co-organised an event on digital storytelling and ‘giving voice’ to patient and family experience https://cardiffdigitalnetwork.org/2016/05/23/digital-storytelling/
Training Allied Health Professional
20th & 22 April 2016 – workshop training to Allied Health Professionals, AHP roles – diagnosis and prognosis of VS/MCS, core skills for AHPs, Communication skills, Best Interests, ethics and law. Health Sciences, Cardiff University.
17 March 2016 – ‘Rehabilitation and Prolonged Disorders of Consciousness’ – Huntercombe Group and Case Management Services, We will be presenting at this conference – looking at family perspectives, other sessions will address pain management, assistive technology, and assessment.
‘She Never Woke Up’: image of his sister, reproduced with permission from William Doan. Annals of Internal Medicine. 2016;164(1):W1-W9. doi:10.7326/G15-0014 http://annals.org/article.aspx?articleid=2480038 ©American College of Physicians.
Neuroscience and consciousness
22 February 2016 – Lecture, Double-act on neuroscience and consciousness – discussing science, PR, ethics and responsibility at Cardiff University
11 February 2016 – Interview on BBC Radio 4 Woman’s Hour – Death, end of life choices and Advance Decisions