Conferences on end of life decision-making: exploring Christian perspectives
Gloucester and Cardiff conference (November -December 2016) We worked with partners to host two conference on end of life decision-making, the role of churches and ecumenical perspectives on ethics and theology. Panels addressed a wide range of issues, including diverse perspectives on treatment withdrawal and exploring advance decisions.
Live-tweeting from court case
28th Nov and 1st Dec 2016 We were given permission to live tweet from a court case concerning Paul Briggs - considering continuation/withdrawal of ltreatment. The first time, as far as we know, that researchers have tweeted from a Court of Protection hearing about life-prolonging treatment. We tweeted from @cdocuk and our personal accounts (@KitzingerCelia & @JennyKitzinger) using #COPBriggs.
'The Last Act of Love': discussion with author Cathy Rentzenbrink
16th and 17th Nov 2016 we co-hosted public events with Cathy Rentzenbrink to discuss her memoir about her brother's catastrophic brain injury, and eventual death after on of the early UK court cases for treatment withdrawal. This was a collaboration with 'Cardiff BookTalk' and with the Being Human Festival
Poetry and Music evening
12th Nov 2016 - We co-hosted a poetry reading and concert - with sonnets and the inaugural performances of music specially composed to reflect new 'coma' research as part of the ESRC Festival of Social Sciences
Cultural representations of coma - Radio discussion
15th Nov 2016 - We contributed to a panel discussion on Radio 3's 'Free Thinking' programme about the Being Human festival - reflecting on cultural images of coma (broadcast 10pm) http://www.bbc.co.uk/programmes/p04gl29m (28mins in)
Art of Caring' exhibition at St Pancras Hospital
21st July to 13th October 2016 - The 'Art of Caring' exhibition at St Pancras Hospital, London - includes work from CDoC collaboration with Play of Light theatre.
"Challenges for Allied Health Professionals working with disorders of consciousness patients and their families: Introducing a new e-learning resource (Prof. Jenny Kitzinger,and Julie Latchem) National Conference on the recent advances in the assessment, diagnosis and multidisciplinary management of people with Disorders of Consciousness (DOC) 13 & 14 September 2016 Holy Cross Hospital, Hampshire.
23rd June 2016 - Our radio exploration of family accounts - "Coma Stories" - broadcast on Radio Wales.
The Art of Caring
24th May 2016 The Art of Caring: An art exhibition exploring the art of caring from many viewpoints, includes designs from our work with Karin Jashapara on her shadow puppetry theatre: ‘Where are you now?’ The Rose Theatre, Kingston, KT1 1HL http://www.artofcaring.org.uk/
16th and 17th Nov 2016 our co-produced art exhibition presenting new visual images of the vegetative state and family experiences was on display at 'Brickstock' as part of the Being Human Festival
Training Allied Health Professional
20th & 22 April 2016 - workshop training to Allied Health Professionals, AHP roles - diagnosis and prognosis of VS/MCS, core skills for AHPs, Communication skills, Best Interests, ethics and law. Health Sciences, Cardiff University.
16th and 17th Nov 2016 the latest performances of 'Where Are You Now?' as part of a conference (the 16th) and then part of the Being Human Festival (17th).
Case study of delay in stopping life-prolonging treatment
Our case study of delay in stopping life-prolonging treatment published in Journal of Medical Ethics: goo.gl/5Y5SSw National coverage of this case including on Radio 4 The Today programme and BBC2's Victoria Derbyshire show
Inside the Ethics Committee
8th August 2016 - BBC Radio 4, "Inside the Ethics Committee": Celia Kitzinger, Tor Butler Cole and Lynne Turner Stokes discussed the ethics of artificial nutrition and hydration for a patient in a permanent vegetative state. Listen to the programme
30th June 2016 - Highlighting why families of VS/MCS patients so often wish their relative had an advance decision- on panel with Tor Butler-Cole, Chair of Compassion in Dying at the lovely Conway building, London.
Training Occupational Therapists
22nd June 2016 - The final workshop group of Occupation Therapists - training in vegetative and minimally conscious states. These workshops are being filmed and will form part of an on-line teaching tool available soon.
Rehabilitation and Prolonged Disorders of Consciousness
17 March 2016 - 'Rehabilitation and Prolonged Disorders of Consciousness' - Huntercombe Group and Case Management Services, We will be presenting at this conference - looking at family perspectives, other sessions will address pain management, assistive technology, and assessment.
Neuroscience and consciousness
22 February 2016 - Lecture, Double-act on neuroscience and consciousness - discussing science, PR, ethics and responsibility at Cardiff University