“Creating a web resource for families of vegetative and minimally conscious patients”.
This ESRC knowledge exchange project has allowed us to further develop and translate the research from the Chronic Disorders of Consciousness Research Centre into a new module for the award winning healthtalk.org site. This was launched in mid September, (Launch event). We used 250 clips from filmed interviews with family members with a relative in long-term coma, vegetative or minimally conscious state (and some professionals) to explore 30 key themes. The resource addresses some of the problems and gaps we identified in service provision and delivery. The themes explored include, for example, ‘Impact on the Family’, ‘Long-term care’, ‘Decision making about serious medical treatment’, ‘Recovery’ and ‘Death and Dying’. The resource is designed to provide support and information for families, health professionals, case workers etc., and will be invaluable in helping communication between them – it has already been used by over 4000 people.
- Visit the new resource – click here
- To publicise the resource (e.g. in a rehab or care centre) download the pdf Healthtalk Poster
- You can see a few examples of the interviews below
Funder: ESRC Knowledge Exchange grant [ES/K00560X/1], and DIPEx charity and Health Experience Research Group, Oxford University